Well I put a call into Emma's G.I. She seemed SUPER irritable since being on the reglan. So she said that she thought that might happen and said we're going on the very last ditch effort. So she wants Emma on 5ml of prilosec twice a day and stay on the good start formula. We see her again on Tuesday. As long as Emma doesn't have any cyanosis (blue spells) we will hold off on the surgery. If she continues to have them then it's my understanding that we're heading to surgery. She also said to prepare for surgery just in case. So, I guess this it is. Sink or swim, hope this upping of the prilosec does its job.
At this point Sean and I just want her not to suffer. She is almost 7 mnths old and it's only getting worse, not better. So if this doesn't work, than we're ready to go for the surgery as well and accept the side effects that come with it. Prayers would be appreciated!
On a happy note here is Emma trying on her Halloween costume. We love fish in this house so she'll be a goldfish. Gotta love her face!
4 comments:
Prayers that she will not need surgery! Love the costume!
I am new to your blog, found you on SHARE after losing my baby at 23 weeks only 12 days ago...
Emma's story give me hope again. I can't believe how big she is.
I started a blog myself, it is a wonderful thing that you are still keeping this up. I am still in the raw emotional state, and I will not have Halloween pictures up a year from now. But I have acceptance and peace... most of the time.
Thanks for sharing.
Jessica, thanks for sharing your story. The emotions will be raw for awhile. I know even though Emma pulled through it was a rough road and there were oints where I truly believe we were grieving. And honestly still are.
Emma is up to 11 lbs. 11 ounces. a few medical issues but we are very blessed to have her here and know that. If you'd like to send me your blog address my email is elaina@stanfordfam.com
If you need a caring friend or someone to talk to feel free to email me as well. *hugs* Let yourself grieve and go through the emotions.
Teresa says that Emma looks like a mermaid!! *s*
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