Sunday, August 13, 2006

I didn't know it rains in August!

Well, when it rains it pours. At least in our house. Emma's feeding issues have worsened. We are charting times she eats when they start/stop, how much she takes and what "symptoms" she has while eating. Like whipping her head back and forth, gagging, sticking her tongue out, crying, etc. We've done this for the last 3 days and we'll be taking it to her ped tomorrow or tuesday. She wants her eating at LEAST 28 ounces and so far she has had 15 1/2 ounces, 17 ounces, 13 1/2 ounces, and so far today 9 ounces with 12 hours to go of the 24 hours. But she is just about sleeping through the night so I'm not real hopeful she'll meet her 28 ounces today either. It's strange because she used to eat 4 ounces no problem, within 15-20 minutes and she would have 8-10 feedings a day. She was a piglet. There has been a definite coorelation which her reflux worsening and feeding problems worsening and I'm not sure the hospital stay helped. There is a possibility she'll be getting a feeding tube, however I am concerned this may worsen the feeding problems, but at least she'll get the calories. It's truly a double edged sword. With that said she has an occupational therapy appointment on tuesday and I'm hoping she can help some or shed some light on the situation.
Lily is schedule for a well baby visit on tuesday however we might not use it. She has sores in her mouth, groin, etc. Somewhat like chicken pox, or hand mouth foot disease. Both are viruses and just need to run their course however we want her seen sooner just in case. She is miserable and cranky. Also, we're considering doing some very delayed vaxing or possibly foregoing certain vaccines so she wont be getting any shots anyways so I see no resason to wait until tuesday. We will probably try to get Em seen during that time instead of Lil. I hope she gets better soon. So far the bumps aren't too bad but I guess in a day or so we should know what it is for sure.
I'll try to keep this updated but life is hectic. If I don't post for awhile don't worry. If something major happens I'll update.

1 comment:

Kelly said...

With Lily, that definitely sounds like hand, foot & mouth disease AKA stomatitis. Destiny got it when she was two and it was her worst sickness to date. We did get meds for her.

With Emma, poor baby on the feeding issues. :( It seems life with a preemie never ends.

Hugs that all get well!